When someone are ill or have a chronic condition, it can be difficult to know what to say. I believe it is in our nature as humans to try to ‘repair’ things. Unfortunately, this is not always possible, and we must accept that ‘it is what it is’.
I thought I’d share some comments people have made to me concerning my hidradenitis suppurativa – It may make you smile, roll your eyes, or think, yes, I’ve been there!
You’ve Got a Boil?
The first, and most annoying, thing people have said to me is when I tell them about my disease. “Oh, so you have a boil!” they exclaim. I used to have one.” I then try to explain, gently and tactfully, that Hidradenitis Suppurativa is much more than just a boil! Even yet, I’m left with the impression that folks believe I’m exaggerating!
At the very least, you can work.
The second thing you should not say is, “Well, at least you can work.” Don’t underestimate the sheer willpower required to show up for work. Dealing with discomfort can be really difficult. Getting out of bed might be really difficult. It takes time to carefully select dressings and get dressed for work. Anxiety can be caused by wondering if you will need that extra pair of trousers or shirt in the car. It takes a lot of strength to get out of bed and go to work on a bad day. It can be difficult.
It is simply a skin condition.
The third thing you should not say is, “It’s just a skin condition.” I must emphasize one more that persistent weariness can be crushing during a flare-up. You have no energy for day-to-day activities and must stock the pantry with convenience foods for days when you simply cannot cook.
But you’re smiling!
“It can’t be that bad, you’re smiling,” says number four on the list of things not to say. Let me inform you that HS warriors are experts at smiling despite pain and agony, and that a grin is not an indication of our happiness or misery.
Never knew about it
Finally, number five on the list of things not to say is, “there never used to be diseases like this, never heard of it!” At this point, I must educate the public. Many persons who have hidradenitis suppurativa have a very private condition. Some people are deeply embarrassed by it. Even though I know I should, there are still days when I don’t tell my doctor. However, it is because of websites like these that enlighten and educate, offer hope, and share remedies that people are aware of HS. I will continue to educate and share until the illness is fully known!
There are probably plenty of additional things you would add to the “please don’t say that” list, and I am confident you will hear them. We will educate the globe together by providing help and sharing our knowledge!
Our Outlook –
Under one roof, we at EliteAyurveda Clinics have a panel of specialists in numerous dimensions of medical domains such as endocrine, autoimmune, gynecology, and so on. We are well-known for taking a multifaceted and root-cause approach to treating chronic and difficult-to-treat disorders.
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According to Ayurveda, hidradenitis suppurativa is a cause of Kapha and Pitta dosha. When the digestive fire (Agni), or Pitta, is out of balance, the Kapha Dosha becomes vitiated, which slows down metabolism. Due to the disruption of fat molecules, they start to build up in muscles and impede bodily passageways, causing painful, swollen sores in the groin, buttocks, thighs, and armpits.
In Ayurveda, hidradenitis suppurativa Treatment is to restore the body’s natural equilibrium by detoxifying it with potent herbal therapies.
The treatment for Hidradenitis Suppurativa at Elite Ayurveda comprises balancing the Kapha and Pitta doshas, as well as providing harmony to the metabolism. The treatment comprises body detoxification, internal drugs to balance doshas, and external applications to heal scars.
The treatment involves combinations of herbs created based on individual Prakruti and Vikruti analysis. Visit our website to know more
Connect with us to get our patient testimonials and also to speak with our patients directly about their experience in getting their disease treated by us and by Ayurveda as a whole.
Medically reviewed by Dr Adil Moulanchikkal, Lead Ayurveda Specialist at EliteAyurveda Clinics. With over 15 years of experience in treating Neurological, Skin & Autoimmune Diseases.
