Part of the Pemphigus & Bullous Disorders Knowledge Library
It is a fair question, asked by exactly the kind of patient we want — someone who reads, checks, and does not take a claim on trust.
There is a self-serving answer and there are clinical answers. We are going to give you the self-serving one first, because you would assume it anyway, and because a clinic that hides its commercial interest behind clinical language should not be trusted with your immune system.
These formulations took years to develop, and selling them is how the clinic stays open. We are not going to publish them. That is a commercial reason. It is a real one, and it is part of the answer.
Anyone who tells you their reasons for withholding a formula are purely clinical is not being straight with you. There. Now the rest.
This is the substantive point, and it is not a dodge.
The active ingredient in EPOH is the sequence. It runs as LIFES:
Now consider what a published ingredient list would actually do. Someone with pemphigus, frightened and out of money, would read it, buy the compounds online, and — like almost everybody — start with the ones aimed at detox, because that is what people believe Ayurveda is for.
And here is what happens then: Phase F, applied before Phase L and Phase I are stable, mobilises internal load faster than the system can clear it — and the condition gets worse.
That is not a theoretical harm we invented to protect a trade secret. It is the single most common way people with blistering disease are hurt by Ayurveda. It is the mechanism behind the story we hear constantly: "I started an Ayurvedic cleanse and within a month I was flaring badly." Those people were right that they got worse. The timing was wrong, not the approach.
A published list is an instruction manual for exactly that mistake. We will not write one.
They are selected and adjusted by phase and by presentation. Mucosa-dominant pemphigus vulgaris in a forty-five-year-old on rituximab is not the same clinical problem as itch-dominant bullous pemphigoid in an eighty-year-old with Parkinson's disease and a drawer full of other drugs.
A fixed list on a public page would be inaccurate for most of the people reading it, and dangerously so for some.
Herbal compounds are not inert. "It's natural, so it's safe" is false, and we will not say it.
Compounds taken by mouth can affect the liver enzyme pathways that also metabolise azathioprine, methotrexate or mycophenolate, and can add load to a liver already working hard. You are on drugs that require blood monitoring for a reason.
And there is a specific trap in this disease: some botanical products sold for "immunity" are immunostimulating — which, in an antibody-mediated autoimmune disease where your immune system is already attacking your own desmosomes or hemidesmosomes, is the exact wrong direction. A shopping list, bought online, taken alongside immunosuppression, with nobody checking your liver function, is a bad plan. We are not going to help you make it.
Heavy metal contamination — lead, mercury, arsenic — has been repeatedly documented in over-the-counter Ayurvedic products bought from unregulated sellers. That is a real and shameful failing in our own field, and we would rather state it on our own website than have you discover it in a hospital.
Handing you a shopping list, in that market, is not transparency. It is offloading a risk we would be responsible for.
If disclosure means "the information you need in order to judge whether this is working and whether it is safe", then you get it:
Entirely formulation-based: oral compounds and topical preparations, couriered to you and taken at home. There is no procedure, no in-clinic therapy, and no clinic visit at any stage. You take what arrives, you apply what arrives, and you can stop on any day.
We do not alter your prescription. Steroids, rituximab, azathioprine, mycophenolate, dapsone, doxycycline, topical steroid — you continue all of them. Any change is made by the doctor who prescribed it. Abrupt steroid withdrawal after prolonged use risks adrenal crisis; reducing immunosuppression in active pemphigus risks a severe flare of a disease that can be life-threatening. That decision is never ours and never yours alone.
If full disclosure of composition before you start is a requirement for you, we are not the right clinic, and you should not enrol.
That is a legitimate requirement to hold. Plenty of thoughtful people hold it. We would rather you walked away with your money than stayed on the strength of a promise we did not make.
An ingredient list, honestly, answers none of the questions that will decide whether you get better. These do:
Ask us. Ask the next clinic. Compare the answers — not the ingredient lists.
Medical disclaimer. This article is for general information and is not a substitute for personalised medical advice. Ayurvedic treatment at EliteAyurveda is individualised following clinical assessment. Do not start, stop or alter any prescribed medication without consulting your treating physician.